UPDATE: Teeters page has grown, and grown, there is now a
list server, a archieve of it, online scrap book, online chat's on Sunday
nights, and even a yearly reunion!!! You Just need to visit to believe it! When we met the Sears there was like 6 or 7 families! WOW! Way to go Cathie and Don!!
Aperts is a birth defect that
affects the hands and feet, as well as the bones in the
head. It is a rare disorder (not as rare as I thought it
was) that Rosemarie is affected with. To us it is no big
deal, she has no real problems with anything related to
it (beside a slight dental problem). We are planning to
start our family and wanted to know as much about Apert
Syndrome as we could so we started looking around. First
we went to doctors and got a little infomation from them.
Then we went to our local Childrens hospital and they
introduced us to a couple here in Cincinnati that has had
a newborn with aperts. We have become good friend with this couple,
and have had the chance to get to know their daughter and her older
brother as they have grown over the years. They gave us
several articles on Aperts and we gave them some. Later
we met again and they introduced us to another couple here locally.
In the mean time We found a wonderful source of information and several great new friends on the
internet. Don and Cathy Sears have a little girl who has Aperts and started up a Page on the Internet (their
address is below) and it is Great. Through Teeter's page we
have met face to face with Cathy, Don and
Elizabeth(Teeter) Sears (several times and really consider them good friends),
The Deacons, the Contrinos, and
a few other families with aperts. Then when Cathie and Don Started yearly get togethers at Myrtle Beach We've met a lot more. The Adults have all been great.
We have also been in contact by E-Mail (and America On-line's Instant messanger) with several
other families and individuals, We have met with a really nice group of
people in Columbus, Ohio from their local About Face
chapter. Meeting so many
people and children has been great. One thing I (George)
can say that I've really noticed is that each of these
individuals has a personality that is freindly, outgoing,
and really uplifting. The smiles on the faces always
makes me give one back.
Getting into this I never thought
we would find so many supportive friends in so many
places in the world, Most of which we owe to Don and
Cathy sears for starting Teeters page.
I could List a lot about Aperts,
however Teeter's page is really the place to go for
information about aperts on the Internet. Join the List Server and ask anyting you want, or email someone privatly.
You can also feel free to ask either my wife or I anything you wish.
No Question will go unanswered unless it is really,
really personal! and then it might still get answered so be careful what you ask.
I know I've asked some very personal questions from some of the people on the list, in private of course, and got answers.
Love has even been in the air at the Apert Reunion, We have one couple engaged to be married!
To find out more about aperts ask either one of us or see
our friends page, a lot of good infomation is available
here.
Teeter's page
HOPE TO SEE YOU AT THE APERTS REUNION!!
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